Waking Up With Stinky Hair!

This morning i have woken up and my hair stinks! This morning I have woken up and I’m a little stiffer than normal. This morning I have woken up and I am a little more tired than normal. This morning I have woken up feeling like last night I had a good night. This morning I have woken up feeling like last night I was almost a normal person again.

Sad as it is to say, it is very hard to socialise when you have M.E. Patients are meant to flip between cognitive, emotional and physical activities (mixed in with lots of rest) so as not to tire ourselves out too much. Socialising however requires all three continuously for the duration of an event. Consequently spending time with friends or family is necessarily exhausting.

This morning however I can reflect on the few hours I spent with two good friends last night and be grateful for the fact that I enjoyed myself. I didn’t find myself in great pain and I was able to continually follow and add to conversation.

We didn’t do anything special, really we just sat around in the beautiful evening sunshine and chatted. These are things however that when you are ill, gain a new more important significance. These are the things that make you feel normal and so when you can’t do them, you don’t feel normal.

Last night, there was no mention of my illness other than the odd joke about my husband having to do most of the running around. For once a long conversation about how I was feeling was not needed, my illness wasn’t impacting on my ability to enjoy myself or on the ability of other people to enjoy themselves.

Ok so today I’m a little more tired than usual and today I’m a little stiffer than usual. Okay so today I am going to have to manage my activities a little bit more carefully in order to ensure I don’t run out of energy!  Feeling so much better over the last couple of weeks (a month on Sunday!) enabled me to enjoy a night with friends. It has enabled me to take the risk of having friends over where I can’t just leave as I get tired.

Why does my hair stink? First barbecue of the season – that’s why!

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How do you feel about this topic? Do any of its ideas resonate with you? I'd love to know your thoughts! K

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